Tuesday, July 21, 2009

Growing Pains

PS--- in this pose I annally greeted my mom with poop catching...sick...welcome.to.mommy.world.




















My mom and I are experiencing growing pains lately. I weight 10 pounds now, so my mom's arm is getting very strong. Meanwhile my tummy is being fussy so I'm beginning to grow into formula. My mom and I are both sad during this transition but TUMMY aches suck! I love being home-- I already roll over, pull my mom's hair and earings, and "climb" up my daddy's chest. Bath time is my best hour and my black and white mirrors make me goo!! Right now my mom is trying to teach me to self soothe-- though I'm not sure it's worth it because she cries when I do. So she is blogging to keep her mind busy. Here are some of my 5 week pictures... I think I'm adorable:)

Wednesday, July 8, 2009

Grateful for the gifts....






















There may be few times in our lives that we experience an event that opens our eyes to gratefulness and humility for our situation. Now that we are finally home, I see reasons for why we had to endure a month (exactly) in the hospital, and I can truely say I am grateful. Family bonds needed to be mended, opportunities to give service were desired, and spiritual preparedness was lacking... temporally we were all READY! Clothes, car seats, bouncers, swings, nursery... I had all of that covered, but I was not prepared to raise a child and so I was given the opportunity to be refined I believe:) And so we are grateful for many gifts;












Having Taylor home---minus his sleepless nights!!!






The increased love in our marriage






Family ties renued






Prayers answered






Fasting recognized-- he came home July 2nd, the day we fasted for






Service






Beautiful pictures from Aunt "Pree" (see below)

Monday, June 29, 2009

The little "fuss-fuss"

I am so sweet wrapped up like a burrito says my dad...

I am the cutest baby... says my biased mom

My tiny hand likes to hold everything, especially mom and dad's hands when I eat





Sometimes I just like to think...



I think my dad taught me this because he does it to my mom when he is being silly









I like to look up at the angels my mommy thinks

















I did not like the taste of this medicine.... hence I vetoed it with an SVT






Hey it's me, Tay boy, fuss fuss, T---whatever they call me... Last night was the first night my mommy got to sleep by me. I wanted to give her the full enchilada, so I was a fuss pot from 2 to 5. I think she reconsidered getting angry at the nurses at the other hospital for not letting her sleep by me. I'm not sure why I was grumpy last night, I usually only cry when I want food, get an IV, or if the clumsy EKG specialist pinches my skin:( I had a photo shoot a couple weeks ago at my old crib, on the recliner from my aunt Pree. I really liked the furry backdrop she let me lay on. Thought I would share them with you as I approach my one month birthday!














P.S.-- I have been SVT free for 5 days and 7 hours...this is a record. My new doctor says if I behave on my new medicine I can go home Thursday- my one month birthday. But don't tell me this because I tend to revolt when they say I can go home... However, prayers to keep this date are much appreciated by my mommy and daddy. I am still a piglet, and I weight 8lbs 1 oz; my mom really considers starving me to keep me tiny, but then I FUSS!

Tuesday, June 23, 2009

A baby who rules the world...


(Baby Tay and his mom who hasn't done her makeup in 19 days, or dried her hair...needing to spend time on herself perhaps:)

This much we have learned from baby Tay; he controls the universe! If he wants to eat he sucks on mom's neck or turns his head half way around with an open mouth. If he doesn't like his nurse, he poops on her. If he wants an IV out, he does so. If he doesn't like his medicine, he has an episode, therefore creating a challenge to find a new one. If he wants you to leave him alone, he grunts. If he doesn't want you to change his diaper, he lifts his bum up (yes he is that strong). If he wants kisses he makes "oooo" lips. If he doesn't want to leave the hospital, he has an episode.... and so this is the lovely waiting game we are playing. His dad says "clearly anything he does, he will do 100%." And so we are the lucky parents of a perfect baby who rules the world. Maybe we are blessed because all we can do is sit with him all day and watch him change. Maybe this will prepare us for more difficult times, and maybe this builds our love and appreciation for family and our heavenly father.

Wednesday, June 17, 2009

Healing Hands for Taylor



God, lay Thy healing hands on these,
Keep them in Thy care.
Help us to remember them,
When we kneel in prayer.
Keep us ever grateful Lord,
And when we are hard to please,
Remind us that our Cross is light,
Compared with such as these.

Sunday, June 14, 2009

The good things in life... BY TAYLOR


...my mom gave me my first "kewpie" hair-do because I got the IV out of my head. YAY! I actually enjoyed her combing my hair, I made "oooo" lips at her (so cute)! I am still in the hospital, but progressing:) I got taken off oxygen today, I'm glad those things don't poke me in the nose anymore! Right now I am writing you because I am getting a new IV and mom can't watch another traumatic event--- I let them know I am unhappy about these medical procedures quite vocally:) I really like my dad to give me sugar water and hold my head and tell me I'm a TOUGH GUY during these times. I eat like a PIGLET, and sometimes I don't like my nurses. I've only had one episode since monday morning because they were doing some beta tests. I hope to be in my BLACK and WHITE world soon, because that's all I see anyways. 

Love,

Tay-Tay

Thursday, June 11, 2009

Beautiful baby miracle....


.... here we are,day 7, at the NICU. My heart is heavy to even make this post because I am so grateful for this beautiful baby boy. He is a miracle, and daily I am reminded that we are lucky to have him. Our prayers were answered by many, even our sweet brother Drew, who woke up in the middle of the night (age 6) because he needed to pray for Taylor. We hold him now, feed him, and are getting to know his sweet personality. He is such a darling, handsome, sweet baby and our life is more full. As you may remember he was a surprise to us, so we know he needs to be here at this time, probably to shape his mom and dad:) Taylor's doctor began the 5 day countdown yesterday provided no "episodes" which are S.V.T. attacks when his heart rate spikes. He is taking his medicine orally now, so here the journey begins....